The Littlest Soldiers

The Littlest Soldiers

Th​e medals on our chests
Are portacaths for meds
Helmets won't stay on
Cause no hair is on our heads.

Our weapons of destruction​
We take every day
We fight the battle within us
While we struggle on to play.

We fight with honor and courage
No marine could do as well
We are only little children
Liv​ing in this hell.

So bring on the medals
The Purple Hearts of Wars
The Gold Cross, The Silver Star
To place upon our scars.

For We are the Children of Cancer
No one has fought so hard
But every day we struggle on
Our LIFE is our reward.
​ by Cheryl Jagannathan​


This is so true! I think of Anthony as my hero. I remember the many times of chemo, surgery's, bazillion medicines that are helping to save his life (he still takes a lot), the sleepless night, and most of all I remember the struggle that this battle has been. we are far from over but little by little we are getting closer. Although we have kissed HLH (his blood disease) goodbye it is all but a distance memory. he is still not able to live a life of a normal 2 year old...but let me tell you the strength that he has is AMAZING!!! The strength that all kids have in order to fight these diseases is incredible. Just thinking about it brings me to tears because I have lived seen and experienced the emotions, the heartache, and small miracles that come along with this journey many call Cancer, although Anthony did not have cancer the only way to heal his disease is to give the same regimen as someone with cancer.

These kids are my hero's and if nothing else by walking beside my brother through his darkest moments in this journey have taught me to be strong and to not give up, to not loose hope..

Tomorrow Anthony reaches a HUGE milestone!! ever since Anthony has been in our care he has had either a central line or exterior picc line in either his chest or right arm.. He is doing SO well that the doctors now feel that he is healthy enough to get the line out.... honestly I am scared because the line he has in now is the last line that most likely the doctors will be able to get in because of all the blood clots that he has in his chest from the central lines. It is a big step in the right direction but once again, we cannot forget and wonder about the what ifs... The amazing part of this is that for the first time ever it will be so much easier to get him dressed, bathes, and to give him the chance to live a normal life without having to worry about pulling the picc line out!!!!

Anthony you are my hero!! I am so amazed at how far you have come since your transplant!!